Last shown on 29 June 2021
A Space in Time is a candid, lyrical, intimate portrait of one family's struggle to transcend a merciless, fatal childhood disease, Duchenne muscular dystrophy, which in turn becomes an unlikely celebration of the disabled life, the life cut short.
The film carries us through an up-close, poetic and frank portrait of the family surviving and thriving through the ups and downs of the disease, as we see Theo and Oskar's gradual transition from walking to greater wheelchair dependency, both through their eyes and the eyes of their parents, Nick and Klara, and how the latter learn to cope with the inevitable reality of losing their sons to an illness that currently has no cure.
Disability is often poorly portrayed or misrepresented, its depiction seeking to elicit sympathy, a sense of tragedy, or worse still, pity, which helps neither someone living with disability nor someone living without it. Children, in particular disabled children, see this all too clearly, their thoughts and actions often revealing and expressing aspects of their experience as ˜disabled" far more clearly and wisely than the usual outpourings of pity from the "able". Need a disabled person's life be necessarily tragic?
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